Category: Let's talk
Jeff Dunn from Guiding Eyes is facing stage four Retinoblastoma. I’m bringing this news here because I feel that all of you who know him deserve to know. I’m working with him personally to coordinate care and so he can go to Hopkins—the best hospital in the world. It is a tough road; nonetheless, we can only keep praying and believing, never, ever giving up the fight.
I must tell you all that he is a man of strength. He is holding himself together through all of this. He is fighting hard and is determined to beat the odds, though; a whole lot is against him right now. It is my hope and my prayer that he does come out okay and lives many more years because is life is not half lived, and he has so many dreams and aspirations. He has been a Godsend to me at times, and he has served as a wonderful pillar of strength for me as well as for hundreds or even thousands of other blind and visually impaired people. I don’t have to really go into detail as to how great he is and how he has inspired many blind and visually impaired people to go on and fight the fine fight for their rights and freedom because most of us know; however, I felt the need to pass this on and let you all know that someone really special among us is in trouble and could use all of the encouragement he can get. He has been there for us, so we now need to do the same for him.
If anyone of you is interested in contacting him personally, you will need to message me privately. I do not at all feel comfortable putting his details on the boards, since many things that we write here can be indexed by Google and his information can fall into the wrong hands, and that is the last thing he needs in a time like this. We can talk, and I can put you in touch with him. Those who really know him and have a personal relationship with him should contact him and let him know that you are there and give him some encouragement. Perhaps you could post something in this thread about what he means to you, why he is special to you, and the differences he has made in your life personally, and I will put them altogether for him to read. So when things get really bad for him, he can look at it and be reassured that many people care about him, and he can continue believing and continue fighting for something so precious as his life.
He is in charge of assistive technology at GEB right? I met him when I was there at GEB March 2007. Sorry, what is Retinoblastoma? Something to do with the retina, right?
I've never heard of him but I wish him all the best. Seems that he's touched alot of people, since he works with Guiding Eyes. It sounds like a kind of cancer.
It is cancer of the retina, and it appears before the age of five. It effects everyone differently depending on how the person's immune system is, the way the tumors are growing, and where they are. There are many factors. For some it never appears again, and others fight it all their lives until they no longer can. Then, there are others who fight a long and hard time but become free after many years. Hope this helps.
I don't know him, but my thoughts and prayers are with him just the same. I have been devastated by the insanity of cancer in my family and I thank God everyday for my life and my closest family's. It is so sad what cancer can do. I will keep him and his family in my prayers.
actually, retna blastoma can be found in babies, as it was with me. that's the reason i'm blind. i was born with it, and by about 3 months old, i had had both eyes, some octive nerve, and the canswerous area removed. if i didn't i wouldn't be here all these years later, and i was only meant to live until i was 5. unfortunetly it has left me with another medical problem, wich i refuse to speek of in a public place, and only people close to me kno about. i was lucky, because they got it all. btw, i don't usually like talking about it, but i did to just explain more about it for thoes who don't kno.
My thoughts and prayers are with this person. I dont know him, as others have said, but whether or not we know him is neither here nor there. I hope he continues to stay strong during this time of crisis. Never lose hope.
Maroon5, as I stated, it appears before the age of five, meaning that it most certainly will be found in babies. That is what has happened to Jeffrey. He was born with it, and he has not been as fortunate as you. I'm glad you are hanging in there and doing okay, though.
You seem like you are a strong person, and I like how you do not focus on what is wrong with you and always painting yourself as the victim. That is a good quality of character to possess. Take care and continue to stay strong.
For all the rest, thanks for your kind words.